The international interest in introducing e-PHRs has emerged as an important area of research in the medical and health informatics domain [1,2]. This interest has been summarised in scoping studies, such as [3–5]. Much of the research, however, focuses on ‘tethered’ e-PHRs [4] meaning records that are offered by a health provider or a specific organisation, such as an employer. ‘Untethered’ e-PHRs refers to health records that can be installed on a personal computer or Website for personal use and are considered to be standalone records [4]. (Source: International Journal of Medical Informatics).